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Just Diagnosed with Small Fiber Neuropathy

Neuropathy | Last Active: Jul 4, 2023 | Replies (235)

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@pieface1971

I have had diagnosis of fibromyalgia since 2003.
Lots of other health diagnoses with chronic pain.
Last January both of my feet began to go numb with nerve pain after a nine day hospital stay with critical low sodium. Rheumatoid arthritis doctor sent me for punch biopsy of both feet. My lab
Pathology returned a diagnosis of small fiber
Polyneuropathy. My small nerves in both feet are dying as it also travels up both legs. In research I read it can affect the autonomic nervous system. I have all the symptoms heart arrhythmia’s, sluggish bowel,Retention post urine ect. Awaiting an appointment that I made 4 months ago to see
A neurologist that has a reputation for helping
With symptoms of problems that have not been
Researched or known a lot about. In my research
It saids the underlying problem is what causes
The symptoms. I am desperately trying to have
A doctor diagnosis my problem so maybe I can get pain relief and understand more. Does anyone else on site have these symptoms or have had a punch biopsy with this diagnosis?
How are you coping? I Am very interested in your
Case and opinion. Thanks for taking the time to read.

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Replies to "I have had diagnosis of fibromyalgia since 2003. Lots of other health diagnoses with chronic pain...."

Hello @pieface1971. I moved your discussion and combined it with an existing discussion titled, "Just diagnosed with small fiber neuropathy." I did this so you could read through some of the members' previous experiences with receiving a diagnosis of SFN and so the members discussing it would see your post as well. If you are responding by email, you can click on VIEW & REPLY to be brought to the new discussion. As you work through some of your new symptoms and diagnosis, there is another active discussion on Connect about how to manage the pain with small fiber neuropathy. You can check that one out here, https://connect.mayoclinic.org/discussion/ideas-for-pain-from-small-fiber-neuropathy/.