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Just Diagnosed with Small Fiber Neuropathy

Neuropathy | Last Active: Jul 4, 2023 | Replies (235)

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@reecey

Hi I am basically on the verge of being diagnosed... is your life managable with SFN? How long have you had it? Can you maintain some resemblence of a normal life sometime after onset of symptoms I am petrified?

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Replies to "Hi I am basically on the verge of being diagnosed... is your life managable with SFN?..."

Hello @reecey, welcome to Connect. I can certianly understand your being scared by the diagnosis. I have had small fiber peripheral neuropathy for well over 20 years and still have a somewhat normal life for an old guy. The more you learn about your condtion, the better chances are that you will find something that will help you. Connect members are a great resource for you. Here are a few other discussions you may want to read through to learn what others have shared and what has helped them.

> Groups > Neuropathy > Ideas for pain relief from Small Fiber Neuropathy (SFN)
-- https://connect.mayoclinic.org/discussion/ideas-for-pain-from-small-fiber-neuropathy/

> Groups > Neuropathy > Small Fiber Neuropathy?
-- https://connect.mayoclinic.org/discussion/small-fiber-neuropathy-3/

@reecey you mentioned you are on the verge of being diagnosed. Are you able to share a little more about your symptoms?

Hi, @reecey - I wanted to add my welcome to Mayo Clinic Connect and also invite @lauraj155 @boo55 @pepperbeau @albiet @rwinney to come greet you and offer any support and thoughts related to your concerns about the manageability of small fiber neuropathy.

Hello and welcome. May I ask how and when will you be finding out your diagnosis? Before I jump in with two feet for you I would like to understand a bit more...if you are willing to share. You ask great questions and came to the right place for support, knowledge and encouragement.
Rachel