Hi ,
I was diagnosed with idiopathic small Fiber Polyneuropathy 3 years ago after the diagnosed wrong due to the result of my blood work . The EMG is normal too .
The symptoms get worse every year . Neuro after he try a lot of medication with me ex ;
Lyrica , Aventyl . Gabapentin Nabilone ( chemical THC )
Finally sent me to the pain clinic and I am on CBD natural twice a day and THC at night . It mask the pain only . Before I take it , was I have sever pain and burning reach to my both knees and right hand . I feel better with CBD because it mask the burning sensation but there is no cure of this disease or even improvement in my case because There is no reverse to the nerve after it damaged .
I hear about the IVIG infusion , I try to ask is there any one with my situation , get this injection?
Thank you

Jump to this post