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Just Diagnosed with Small Fiber Neuropathy

Neuropathy | Last Active: Jul 4, 2023 | Replies (235)

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@lauraj155

@albiet, I have neuropathy and pain is mainly in my feet. I have had it since 2005. I wanted you to know that I did go on a very dose of hydrocortisone which was equivalent to 3 mgs. Prednisone. This helped me more than any other medication I was taking. I took it for a few years and weaned off of it. Things remained calmed down for a very long time until now. However, I really don’t want to go down the steroid road again because of the side effects. I wish you the best. -Laura

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Replies to "@albiet, I have neuropathy and pain is mainly in my feet. I have had it since..."

thank you laura. how does steroids work.? what have been the side effects for you?
are they taken for a long time or just a short course/when i looked at the mass general/harvard research it looked like out patients got 1mg/kg/day x 4 weeks then a brief taper.