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Just Diagnosed with Small Fiber Neuropathy

Neuropathy | Last Active: Jul 4, 2023 | Replies (235)

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@albiet

I have a positive skin biopsy for small fiber neuropathy. over the years i have had massive burning and other sensations but never realized that it came be attributed to this. one of my drug panels came back my ganglioside gd1a at 123 with a normal of 0-50. i am being told its a non specific indicator of immune system disfunction. my actual question is has anyone actuak knowledge of steriods or ivig working for this. i saw some results rfom mass general indicating that it might but talked to 2 drs in nyc and both said no.

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Replies to "I have a positive skin biopsy for small fiber neuropathy. over the years i have had..."

Hello @albiet, welcome to Connect. There is another discussion where your post may receive more visibility and you can meet other members and learn what they are doing for treatments. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion:

> Groups > Neuropathy > Just Diagnosed with Small Fiber Neuropathy
-- https://connect.mayoclinic.org/discussion/just-diagnosed-2/

@elained, @arcticmark, and @sdswoboda53 have discussed IVIG treatment in other posts and may be able to share their experience with you. Has your doctor suggested any other treatments for you?