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Just Diagnosed with Small Fiber Neuropathy

Neuropathy | Last Active: Jul 4, 2023 | Replies (235)

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@johnbishop

Hello @albiet, welcome to Connect. There is another discussion where your post may receive more visibility and you can meet other members and learn what they are doing for treatments. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion:

> Groups > Neuropathy > Just Diagnosed with Small Fiber Neuropathy
-- https://connect.mayoclinic.org/discussion/just-diagnosed-2/

@elained, @arcticmark, and @sdswoboda53 have discussed IVIG treatment in other posts and may be able to share their experience with you. Has your doctor suggested any other treatments for you?

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Replies to "Hello @albiet, welcome to Connect. There is another discussion where your post may receive more visibility..."

john, thank you. the dr first diagnosed this 10 years ago. recommend nothing and thats from someone at cornell. when i went back this year, i tried to explain the pain and they offered me PT. i just saw a different PN doctor in nyc. he is recommending lyric or neurotin, neither of which i'm happy about but with the pain dont have much choice. i told him about the study at mass gen showing ivig or steriods and he said we can discuss but doesnt seem likely especially due to ivig cost. what interesting is my major pain is not in my hands or feet. i iget alot of internal buzzing all over . i get burning on and off throughout body. have started to get some minor tremors but being told its nothing or med related. sorry to run on but anyone have any ideas?@elained, @arcticmark, and @sdswoboda53 i hope posting your symbols gets me to you guys.