Just Diagnosed with Small Fiber Neuropathy

Posted by boo55 @boo55, Feb 1, 2019

Hi . I am a bit scared here. Had positive skin biopsy for small fiber. What tests will the Neuro ask for to find causation? Was diagnosed prediabetic in Fall. My Dad had similar issues and eventually lost a toe. Always felt he was walking " on fire ". My feet have similar issues. This is just one big Ick. Boo

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lavieauxusa1972 | @lavieauxusa1972 | Feb 16, 2019

how do you know if you are sensitive to gluten? is there such a food test that can confirms that?

boo55 | @boo55 | Feb 16, 2019

In reply to @lavieauxusa1972 "how do you know if you are sensitive to gluten? is there such a food test..." + (show)

High IGA numbers on blood test but no Celiac. Mostly my gut. IBS for many years. Just my own personal hypothesis, @lavieauxusa1972

lorirenee1 | @lorirenee1 | Feb 17, 2019

In reply to @lavieauxusa1972 "how do you know if you are sensitive to gluten? is there such a food test..." + (show)

There is a blood test that specifically tests for gluten sensitivity. Just ask your neuro doc or internist to order it.

boo55 | @boo55 | Feb 18, 2019

In reply to @lorirenee1 "There is a blood test that specifically tests for gluten sensitivity. Just ask your neuro doc..." + (show)

Thanks

lorirenee1 | @lorirenee1 | Feb 18, 2019

In reply to @peggyn "I'm not sure what kind of neuropathy I have, but my neurologist is sending me to..." + (show)

Pegg, My heart goes out to you. I understand the burning only too well. Sometimes I just feel like taking my shoes off, and putting my bare feet in the snow. Neuropathy is just treacherous. I do have one thing that helps my feet with burning, stinging, stabbing aching...I use a CBD salve I rub on my feet, and it helps the pain and burning. It is from the Ananda Hemp company. They sell CBD products, but are legal, because the do not use the part of the plant used to make marijuana. Anyway, this salve helps with immediate, very bad burning and pain. It is Ananda Spectrum Salve 125, topical cream. They have only one type of cream on their website, you cannot miss it. I have tried many types of creams, laser, the typical neuropathy pain drugs, but this salve just saves me. For me, it lasts about an hour or so. Then I reapply if needed. The cream costs about 25 bucks, and is worth every penny. Shipping in a few day. Best regards, Lori Renn

robge | @robge | Feb 18, 2019

Hello @boo55, I was just diagnosed as well! Thinking about you and sending healing thoughts.

boo55 | @boo55 | Feb 20, 2019

Thanks. @robge.
What were your first symptoms ? SFN is a Werid, huh ? You can describe it to friends and family but it is hard to understand. Sending kind thoughts. boo55

jasont | @jasont | Feb 22, 2019

In reply to @affliction313 "I was diagnosed with periphal neuropathy about a year ago. I am not diabetic or even..." + (show)

I am so sorry you have to deal with this. My name is Jason and i have been diagnosed with Idiopathic Small Fiber Nephropathy and am 45 years old. i do not have diabetes, i do not drink alcohol and am looking for others to just talk to.

Chris Trout, Volunteer Mentor | @artscaping | Feb 22, 2019

@jasont Greetings! I am a “me too”. Same diagnosis. Been confronting all of the ways in which SFN impacts quality of life and am searching for activities, treatments and advise from fellow traveler’s along this road. What has been recommended to you that helps contain the symptoms? What would you like to ask about? This is a very good channel or pipeline for communicating and learning. Stay positive and know that I am wishing you a pain free day or even a few good hours of peaceful sleep. Chris

John, Volunteer Mentor | @johnbishop | Apr 4, 2019

In reply to @albiet "I have a positive skin biopsy for small fiber neuropathy. over the years i have had..." + (show)

Hello @albiet, welcome to Connect. There is another discussion where your post may receive more visibility and you can meet other members and learn what they are doing for treatments. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion:

> Groups > Neuropathy > Just Diagnosed with Small Fiber Neuropathy
-- https://connect.mayoclinic.org/discussion/just-diagnosed-2/

@elained, @arcticmark, and @sdswoboda53 have discussed IVIG treatment in other posts and may be able to share their experience with you. Has your doctor suggested any other treatments for you?