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Just Diagnosed with Small Fiber Neuropathy
Neuropathy | Last Active: Aug 12 10:26am | Replies (236)Comment receiving replies
@johnbishop was diagnosed with periphal neuropathy about a year ago. I am not diabetic or even close, I do not drink often maybe a drink once a month, I have had the elctro stuff done everything looked fine….numerous times blood work has been done. and they can not figure out a cause. I am only 42 and very active this has really changed my lifestyle. They have basically said we don't know why this is just going to be a nuisance for the rest of your life. I was on 1800 mg of gabapentin and that did nothing now I am on 400 mg of lyrica a day which doesn't seem to help either. All they keep saying is oh your a bigger guy it may take more medicine for it to work on you. I am trying to find a better answer than that is there any sort of doctors, clinics, ect. that specialize in this sort of thing?
Do you have any recommendations for my area or surrounding?
Replies to "@johnbishop was diagnosed with periphal neuropathy about a year ago. I am not diabetic or even..."
I did not get help from 1st two neurologists. They never mentioned small fiber neuropathy.
You need some one who does. Maybe try asking your neuro for smallfiber pn specialist. Also try pain- management, they may know a referral for this type of neurologist.
Ask about punch skin biopsy as well.
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Hello @affliction313, I understand your frustration about getting answers. That's one of the reasons Connect is a great source of information when we can share and learn what other members are doing for treatment. You might want to introduce yourself in the following discussion where you can meet other members and learn what they are doing for treatments.
Groups > Neuropathy > Living with Neuropathy - Welcome to the group
-- https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
I don't have any pain with my neuropathy so the drugs don't do anything for me. It's my understanding that the longer you are on these types of drugs, the more you will eventually have to take but I have no medical training or background so it's just what I've read. You can read my story and what helps me a little here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
I wished I had an answer for your question - are there any sort of doctors, clinics, etc. that specialize in this sort of thing? A neurologist is the doctor that specializes in diagnosing neuropathy through testing, symptoms and physical exam.