Ugh, I hear ya.
My experience is only mine. But I would find specialist, they can do punch skin biopsy acs some other tests and dif blood work.
I'm in ny, i'm waiting for my appt for punch skin Biopsy by only specialist in area outside of nyc.
None of the anti seizure meds worked for me.
I just started cymbalta last week and it does seem to help. I also use medical marijuana in oil form from licensed dispensary. As well as tramadol.
Maybe u can ask John who is one of the leaders here on this forum.
He seems to find a link for everything ! Which is great !
I hope this helps even a little. If nothing else, this mayo clinic forum confirms you are not alone by far.
The gas to be someone in all of ohio that can help you w this exceptional pain.
Best of luck,
Claire