Hi,
It could very well be small fiber neuropathy. That will not show on emg, reg bloodwork .
You need a specialist in PN (small fiber) .
Idk where you are, maybe look for larger facility in your area.

@affliction313 My experience is with issues that are caused by nerve compression which can cause pain anywhere along the path of the nerve. What has really helped me is myofascial release work that my physical therapist does. Injuries, poor posture and body mechanics, and surgery cause scar tissue in the fascia that gets too tight and because that can pull the body out of ergonomic alignment, it can cause a lot of pain and reduced circulation of lymph fluid in the body (which is vital to remove waste products) so that stuff gets trapped in tissues that are not hydrated properly. This is what has recently been called the "interstitium" which is the "new" organ in the body, but this therapy to treat fascia has been around for 40 years and was developed by John Barnes who is still teaching. I have been doing this MFR for about 4 years for thoracic outlet syndrome and more recently spine surgery that was done at Mayo. During the time I was treating the TOS with MFR therapy, a disc ruptured in my neck. It took a few years to find a surgeon to help me during which time bone spurs grew and all of it compressed my spinal cord, but MFR and physical therapy helped keep my neck as stable as possible. Even though I needed surgery, I had good pliabililty of my neck muscles from MFR, so that made the surgery a bit easier because the muscles were loose enough for easier access by the surgeon, and my recovery was great. My therapist told me patients doing MFR have better recoveries and she was right.

Here are a lot of links to information and this treatment is a slow process to work through the layers, and it's different for everyone. An expert level therapist can feel the pathways of tight fascia webbing through the body and work to release it. MFR can treat and resolve problems that traditional treatments have failed to resolve. Once you understand this, there is a lot you can do at home. The patterns change as you work through the layers. There is a lot more information at this myofascialrelease.com website, but these links caught my attention.

Problems that MFR helps
https://myofascialrelease.com/about/problems-mfr-helps.aspx
Benefits of Massage-Myofascial Release Therapy on Pain, Anxiety, Quality of Sleep, Depression, and Quality of Life in Patients with Fibromyalgia
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3018656/
Therapeutic Insight: The Myofascial Release Perspective—Depression John Barnes
https://www.massagemag.com/therapeutic-insight-the-myofascial-release-perspectivedepression-8584/
Use Fascia as a Lever John Barnes
https://myofascialrelease.com/downloads/articles/FasciaAsALever.pdf
Therapeutic Insight: The Myofascial Release Perspective—Sympathetic and Parasympathetic Shock
https://www.massagemag.com/therapeutic-insight-the-myofascial-release-perspectivesympathetic-and-parasympathetic-shock-7709/
Lumbo Sacral Decompression video with John Barnes

I am so sorry you have to deal with this. My name is Jason and i have been diagnosed with Idiopathic Small Fiber Nephropathy and am 45 years old. i do not have diabetes, i do not drink alcohol and am looking for others to just talk to.

Hi ,
I was diagnosed with idiopathic small Fiber Polyneuropathy 3 years ago after the diagnosed wrong due to the result of my blood work . The EMG is normal too .
The symptoms get worse every year . Neuro after he try a lot of medication with me ex ;
Lyrica , Aventyl . Gabapentin Nabilone ( chemical THC )
Finally sent me to the pain clinic and I am on CBD natural twice a day and THC at night . It mask the pain only . Before I take it , was I have sever pain and burning reach to my both knees and right hand . I feel better with CBD because it mask the burning sensation but there is no cure of this disease or even improvement in my case because There is no reverse to the nerve after it damaged .
I hear about the IVIG infusion , I try to ask is there any one with my situation , get this injection?
Thank you

Taking 50mg of Benadryl a few hours before bed helps me, I take it at 6, bed by 11. If I know I'm going to have a busy day, I take 800mg ibuprofen before activity. Doc wanted to put me on gabapentin 200mg at night, after researching it, I decided not to try it. I have more fatigue and muscle tightness more than anything. An electric blanket also helps. I switched to the doctor Scholl's brand of shoes, made a huge difference in the leg pain.