Hello again Becky: I have changed oncologists as the first one did not even follow up with me on the PVT clot... amongst other things... He sent a nurse in two days after my PVT clot which was diagnosed at the outpatients at the hospital, during my chemo treatment to ask how I was feeling... that's it...
I have only seen my new oncologist once, and will be seeing her again on August 29th ... I have written down quite a few questions to ask her that I only find via the internet or sites like this... I had to resort to internet information since the first oncologist never really told me anything about my cancer really... I once asked him if he was looking into any clinical trials for me..and his answer was if I find anything to let him know... I responded by saying to him that I wouldn't even know what to look for as he is the one that knows my cancer and the numbers and whatever goes with it...
I am really in the dark about my cancer other than knowing that I was first on Carboplatin with Premetrexed for about 5 chemo sessions... and now just on Premetrexed and that my tumours have shrunk. When I insisted on an appointment with the first oncologist regarding my PVT clot... I did ask him if I should exercise... he said no at that time... but did say to walk on it alot and do stairs to get the blood flowing.. my leg at that time was three times the size it should of been.. everything seems okay with the leg now.. swelling has totally gone down...took almost 2 months before it started going down, but now is basically back to it's normal size...Clot was 8 cm and was above my thigh... but swelled my whole leg right down to the toes.... I still feel some stiffness in the bottom part of my leg and ankle and sometimes I feel a bit of numbness and tingling. and now am on Eliquis for life 🙁
I am now walking a bit more and doing an incumbent bike (about 5 minutes a day).. and tai chi on Wednesdays... I also try to do the 8 pieces of brocade in tai chi at home in the morning... takes about 15 minutes... i plan on starting yoga at the hospice centre in September where i now take the tai chi.
I will ask my new doctor about exercise on the 29th however. I will also see if there are personal trainers that deal with cancer patients through the cancer centre where I get my chemo every 3 weeks presently... I will also put this on my list of questions for the new oncologist... I am hoping for a bit more compassion with this oncologist... I am basically on this journey alone... my family lives about 1200 miles from me and I have chose not to tell my mom about the cancer... she is getting on in years and I don't want to shorten her life by her worrying about me... it won't fix my cancer... my sisters who live far away and my children know and do call once in a while to see how I am doing ...