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Update: after 5 infusions of Alimta, which I’m tolerating well, my CEA has only dropped 3 points, leading to me see that it’s effectiveness may soon be waining. My 2nd opinion oncologist at MD Anderson suggested adding Keytruda to my Alimta infusions when the Alimta alone stops working. My primary oncologist asked me why I should consider this when the immunotherapy I tried before (Imfinzi) didn’t work and allowed my cancer to metasticize. I can’t answer her. Has anyone had Alimta AND Keytruda simultaneously? And another question: what’s the protocol to get my primary onc and my second opinion onc talking to each other? Thanks.
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After 2 Keytruda infusions added to my Alimta my CEA count has increased again, but seems to have slowed slightly, possible because I stopped CBD 2 weeks ago? New question: Keytruda and Prolia interaction? Anyone run across this issue? I’m due for my semi annual Prolia shot but see there may be interactions with Keytruda and steroids required by Keytruda. Oncologist referred me to Prolia prescribing GP and he’s referred me back to Oncologist!
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This is a challenging subject. My wife like you has her specialist Oncologist at Mayo and a local oncologist where we live. We consider Mayo to be the lead for disease strategy and our local oncologist, one who executes the strategy on a daily/monthly basis labs, Octreotide, Afinitor prescriptions), etc.
Luckily, they work well together. Our local providers practice is a Mayo Network Partner so that may make a difference. We also haven’t run into any ‘controversial’ issues like yours.
In your case, I may ask to arrange a three way conference call with them with you acting as the moderator asking them to develop a strategy that will work in your best interest. A live phone call with all on the line may make a difference. Too many people hide behind emails and messaging.
Just my two cents.