Connect
← Return to Tarlov Cyst on the spine: Any advice?
Discussion
Tarlov Cyst on the spine: Any advice?
Spine Health | Last Active: Oct 21 8:17am | Replies (173)Comment receiving replies
Im in BC,Canada.Talking to my lovely personable GP is useless,says lots of words and excuses but no answers for my pain issues. I have had MRI's and it seems I have Torlov cysts too. I attend the pain clinic for various treatments non of which work very well. EVERY Dr says they don't cause pain, 'they mean nothing and you can be born with them'. The person who ever it was that reported on my MRI's said " there is no account for this woman's pain' so again another Dr who has no idea. I bet if someone would listen to me and treat me in a holistic way I could show them exactly where the 2 that I have are because I can put my finger right on the exact spot on my spine where the pain is radiating from. I keep wondering if it would be worth me going back to live in UK to see a Dr in my own country to see if they would have answers. I am 67yrs old I've had pain since I was 29yrs old but this pain is about 10yrs old and I feel I am just sitting waiting to die because there are so many things I can't do. I went back to UK 2 Xmas's ago and I was in so much pain on the 10hr flight I feel I can't do it again, I had to constantly move and if anyone knows what a Huntington's Patient looks like well that was me on the plane. IWISH SOMEONE WOULD COME UP WITH AN ANSWER.
Replies to "Im in BC,Canada.Talking to my lovely personable GP is useless,says lots of words and excuses but..."
Kindof in same boat as you. I'm in Toronto and feel like no docs here understand what tarlov cysts are and just dismiss me. Have a large Tarlov cyst in sacrum pinching nerves , am considering a flight to my home country where the surgery is definitely available.
Would your 10hr flight be better if its a business class where you can be lying flat? Or do you think it's irrelevant..simply being in a pressurised cabin just makes the pain worse?
The flight to my home country is around 19hr so would wanna seek any advice i can....
Connect
@summertime4 ... just a quick note as noticed you used to live in UK.... I moved to Canada on my own 1962... all my close family passed away now so will never go back unless ashes to put with theirs. I have heard "good and bad" stories of doctors in Canada where I live; in USA from friend who spends winter there (although I went to a clinic in Florida once and they treated me royally); and in UK. Truly sorry to hear about your pain... I don't know about Torlov cysts but this is 2021... and you are still in pain from them? I can take quite a bit of what life has and will throw at me but I have a very low pain tolerance and what it does to me is make me very emotional. So many illnesses and such may bot be life-threatening but the sure are life-altering. Just wondering if you have checked out internet sites from UK - I notice lately there are a lot of reliable sites from many countries. Just wanted to say Hi ad I hope someone here - this great site - can lead towards an answer. J.