Two doctors in United States are specialists in the area of Tarlov Cyst Disease. Dr. Frank Fiegenbaum, Dallas Texas. And another in Sacramento, California. Sorry, I don't have his name right this minute. Google, 'The Tarlov Cyst foundation.' Plenty of info on Google. I have had symptomatic Tarlov cysts for 17 years. I'm currently working on getting a telephone consult with Dr. Fiegenbaum. Hope this is helpful. I'd like to talk more.