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Tarlov Cyst on the spine: Any advice?

Spine Health | Last Active: Feb 5 8:25am | Replies (167)

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@summertime4

I have seen several people say they have Tarlov cysts. I had not heard of them before so I of course looked them up. I am very frustrated and I must say angry at doctors who are brushing you off. Tarlov cysts can and will cause severe pain, headaches and difficulty with movement as some members have described. What do they mean when they say they don't know much about them. If they don't they need to get together and find out about them. As I can see there are many people suffering from and told their pain is not caused by them. I just finished reading that pain can be very severe and other problems can occur. I also read, to my disappointment that little research has been done. It was noted that there are several treatments that may help. Have any one had their doctor explain what treatment options are available. Too often doctors brush us off with it's part of getting old, do not know much about it or that is common. Sorry, if we have pain and difficulty waling, standing, being active, there is something wrong. It frustrates me. I was told that we were not meant to be in chronic pain without even a suggestion of what the problem is. Please, for all those suffering from Tarlov's cysts get with your health provider. It seems to me that further investigation needs to be done on this rather than saying they do not have much information about this.

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Replies to "I have seen several people say they have Tarlov cysts. I had not heard of them..."

Im in BC,Canada.Talking to my lovely personable GP is useless,says lots of words and excuses but no answers for my pain issues. I have had MRI's and it seems I have Torlov cysts too. I attend the pain clinic for various treatments non of which work very well. EVERY Dr says they don't cause pain, 'they mean nothing and you can be born with them'. The person who ever it was that reported on my MRI's said " there is no account for this woman's pain' so again another Dr who has no idea. I bet if someone would listen to me and treat me in a holistic way I could show them exactly where the 2 that I have are because I can put my finger right on the exact spot on my spine where the pain is radiating from. I keep wondering if it would be worth me going back to live in UK to see a Dr in my own country to see if they would have answers. I am 67yrs old I've had pain since I was 29yrs old but this pain is about 10yrs old and I feel I am just sitting waiting to die because there are so many things I can't do. I went back to UK 2 Xmas's ago and I was in so much pain on the 10hr flight I feel I can't do it again, I had to constantly move and if anyone knows what a Huntington's Patient looks like well that was me on the plane. IWISH SOMEONE WOULD COME UP WITH AN ANSWER.