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@jolinda

When I was at stage 4 like you are now I felt pretty bad in general, after transplant I feel great.
Are you in the process of looking for a kidney donor, is that something that is right for you?

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Replies to "When I was at stage 4 like you are now I felt pretty bad in general,..."

I'm not to that point yet. My dad had PKD and he passed from a heart attack in 2001 so I don't have anyone to talk to who has been in this situation. Both my girls 25 and 29 also have PKD so I feel I need to be a good role model and get more informed. I have a new nephrologist that I see in February so I have a lot of questions to ask.