@wawryk01 I understand the frustration. Most TOS patients are accused of malingering and are not diagnosed for a number of years. Doctors and their ability to pinpoint our issues as patients are greatly affected by good or bad communications, and if the doctor is willing to listen to and believe the patient's symptoms and how much it was covered in medical school. TOS gets glossed over and doctors think it's rare; it isn't rare, but getting the proper diagnosis is the real problem. My TOS diagnosis came after carpal tunnel surgery that didn't resolve the issues completely and my hand was turning blue. That surgeon just took my pulse and told me I was fine and that his surgery fixed it all. After I had the correct diagnosis that he had missed completely, he wouldn't help me get physical therapy for the TOS and claimed he knew nothing about it... well that was true. You will need to advocate for yourself and seek out knowledgeable professionals. Good luck. Look for a place that treats TOS and you should find some doctors who know about it. Mayo is great for that if it works out for you and would be well worth your time.