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cwallen9 (@cwallen9)

Ear Tinnitus and Pain with Neuropathy

Neuropathy | Last Active: Jul 3, 2021 | Replies (78)

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@wolfbauer

What I was trying to explain is that people mistakenly think that Guillain-Barré is only caused specifically by the vaccine itself. It's caused by an autoimmune response to the genetic material of the flu virus which is present in both the vaccine and (obviously) the contagious flu virus. The flu vaccine contains inactivated flu virus (basically chopped up flu virus genetic material that your immune system recognizes as the flu and [usually] creates antibodies against the strains of the flu virus contained in the vaccine). Yes, it sounds like you have Guillain-Barré, and if you do, it's clear the vaccine caused it. I'm trying to convey that many people refuse getting the flu shot because of GB, but everyone has the same statistical chance of getting GB from catching the flu from a doctor's office door knob as they do from the flu shot (in my opinion, if the risk is equal, why not get the flu shot and bolster your chances of being immune to the seasonal flu virus?). The flu shot doesn't always cause flu-like side effects (the majority of people who receive the vaccine experience no side effects save for perhaps a little soreness in the muscle from 0.5mL of vaccine being injected), but I can tell you from experience, when it does cause flu-like symptoms, it can knock you on your butt. It's a matter of semantics, but it's not technically the flu… it's impossible to contract the flu from the flu vaccine (the constituent parts of the inactivated virus are incapable of causing infection or replicating; they've been destroyed). I'm not trying to be a pain, I'm just passionate about the topic and trying to educate. I went to college to be a doctor of pharmacy, and I'm licensed by the American Pharmacists Association to vaccinate patients with all vaccines (depending on the state; in RI where I went to school, we were able to give out all vaccines. I live in, and grew up in, NY, and we only used to be able to administer the flu and pneumococcal vaccines, however they have allowed pharmacists to administer many more vaccines in recent years). I have been administering vaccines since I was 21 (I can tell you, women seem to have no problem with needles, and men either whimper, or they try to be tough, flex their muscle, and all that does is cause the needle of the syringe to tear through the muscle instead of sliding through the fibers more easily in a relaxed muscle). Anyway, after my long rant, I'm glad to hear you don't have MS, and if you do have GB, it sounds like you're on the mend! Before I was diagnosed with all my health conditions such as small fiber neuropathy and autonomic dysfunction, one of my specialists was convinced I had MS, and I went through the same tests… I can relate to your relief of not having it. GB sucks, my great uncle had it really bad; I wish you the best of luck at your appointment and through your recovery and hope you feel better soon!

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Replies to "What I was trying to explain is that people mistakenly think that Guillain-Barré is only caused..."

Hi @wolfbauer, yes thank you, This is the fourth flu shot in my life so I'm aware of mild side effects and not so fun side effects. I now know people can get Gillian barre from the flu shot and from the flu and also from a long term illness or bout of diarrhea and research can't explain why that happens. After what happened to me, I will never get another vaccine as long as I live. Besides, the flu vaccine only reduces the risk or a couple strains of the flu. I'd rather get the flu then Guillian Barre. I went out last night with my husband for the first time since this happened to me (I pushed myself) and we had to leave the play at the theater because I was relapsing fast. Also, I positive I have Lyme disease so the reaction to the vaccine just complicated everything. My neurologist first suggested I had small fiber neuropathy as well. That's just a way of saying "they don't know". Maybe your small fiber neuropathy is from all the vaccines you've had or maybe you have Lyme and the co-infections. I know the Lyme vaccine gave my dog a huge lump on the back of her neck. That's where the vet techs injected it. Wrong place I was told after by another vet. My dog's back of her neck is always huge (brought her to the ER vet and they pulled out fluid but it came out non specific for anything)and she has numerous bouts of front leg lameness. She won't let me massage her neck or spine where the lump is and that was injected 2 years ago. I had a very healthy Border Collie that went in for her vaccines and 2 hours later went mad, lame and got kidney failure within in a month then seizures to full blown stroke that killed her. The problem being is that these all these vaccine side effects, debilitating reactions and deaths are not reported by vets and human medical professionals. We tell the vets and doctors and they dismiss it. I also understand there is Mercury in the flu vaccine and other toxins am I correct?

Dear @wolfbauer, Thank you for your explanation about vaccines. I wonder if I have an accurate understanding how all vaccinations and medications are approved by the FDA?

I think I understand that clinical trials are made on drugs and vaccines, and that approval requires both that the drug or vaccine provides measurable benefits over placebos in the vast majority of those receiving the drug or vaccine, AND that side effects occur only in a very small percentage of those in the clinical trial. Only when serious side effects occur in a statistically significant number of people would a drug or vaccine be denied approval or taken off the market.

In other words, drugs and vaccines that are approved by the FDA are almost never 100% effective, nor 100% percent safe for every one. Is this accurate Wolfbauer?

I cannot take opioid drugs because I very quickly developed serious side effects. Cymbalta gave me both Myoclonus and Syncope in year SIX. Until then it was amazingly successful for treating my pain.

These drugs were approved by the FDA because they are beneficial to the great majority of people. My experiences, while frightening and possibly dangerous, do not fall into the category of statistically significant.

Of course, when we or a loved one are among those who have a serious side effect from a drug or vaccine, the impact can be tragic.

The refusal of a vaccine based on a tiny percentage of negative side effects may result in more deaths from infection with virus than from the vaccine, which is the case, for example with measles.

It is human nature to base our decisions on first hand accounts, rather than statistical evidence. We ask others how a drug or vaccine 'worked for them' when one person's experience in no way guarantees that we will have a similar experience. How any drug or vaccine affected your Aunt Mary is simply no indication of how it will affect me.

Was curious if you’ve heard of others getting it from the covid vaccine? (SFPN)

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