The NIH diagnosed me with acqueduct stenosis at a research study in Bethesda. Patient literature says acqueduct stenosis is a term used in hydrocephalus diagnosis. I also have myasthenia gravis. My meds, the situation with my health really prevents me from being an authoritative credible leader, so I opt for the disability. It is what it is unfortunately, I'd rather be employed and at the office.

Thank you for bringing me into this conversation. I was diagnosed with hydrocephalus last spring at Mayo in Jacksonville. I was also diagnosed with small cell lung cancer 3a. Since then I have had chemo & radiation and now researching before having whole brain radiation. Full body MRI shows no spread of cancer. Also the small lung tumor has shrunk by half. My last brain MRI showed no brain metastasis, but did show moderate sequela of chronic small vessel ischemic disease. Next week I go back to Mayo for consultation about best plan going forward. My balance & gait are not good. Am hoping for possible options to control the hydrocephalus. My balance & gait are not good.