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Trying to get my daughter with a seizure disorder on epidiolex

Epilepsy & Seizures | Last Active: Jul 27, 2019 | Replies (34)
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@jakedduck1

@pamelastewart5
Good morning,
That’s what I thought but my math ranks right up there with my cooking! I was calculating, well trying to calculate the max dose for his weight and I get 1,180mg. @ 20mg/kg.
Any mathematicians out there?
Do you know what the maximum dose for Caleb is? My guess is he’s taking 10mg/kg but that’s only an uneducated guess.
Jake

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Replies to "@pamelastewart5 Good morning, That’s what I thought but my math ranks right up there with my..."
pamelastewart5 | @pamelastewart5 | Jul 15, 2019

Thanks, Jake. We will bring up the possibility of increasing his dose. At this point, he is status quo--about the same as he was before we started the Epidiolex, when he was on Dilantin, Celontin, and Med. Cannibis. The Med. Cannibis is now gone. He has 1-3 seizures a week when he sleeps, dozes a lot during the day, and bears weight with assistance.

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