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Trying to get my daughter with a seizure disorder on epidiolex

Epilepsy & Seizures | Last Active: Jul 27, 2019 | Replies (34)
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@jakedduck1

@pamelastewart5
Hi
I was curious if Caleb was having any side effects?
In studies about 94% of patients did. The most common was tiredness.
Fingers crossed it works well for him.
Jake

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Replies to "@pamelastewart5 Hi I was curious if Caleb was having any side effects? In studies about 94%..."
pamelastewart5 | @pamelastewart5 | Jun 12, 2019

Hi,
Caleb always dozes off a lot during the day, and that has not changed. He had one grand mal seizure yesterday afternoon, while dozing in his wheelchair. That is his first seizure since he started on Epidiolex. His dose is still low. No other changes, bad or good, so far. I hope this works.
Thanks for your interest!

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