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Trying to get my daughter with a seizure disorder on epidiolex
Epilepsy & Seizures | Last Active: Jul 27, 2019 | Replies (34)Comment receiving replies
@mmas
I’m sorry to hear the Epidiolex isn’t working. Have you tried Intranasal midazolam (Verced?) Does your daughter have cluster or status seizures? If she doesn’t this medication probably isn’t right for her. I’d ask the Neurologist though.
Here is a video of how to use Versed:
https://m.youtube.com/watch?v=KBvFywzUD28
Fingers crossed improvement is near,
Jake
Replies to "@mmas I’m sorry to hear the Epidiolex isn’t working. Have you tried Intranasal midazolam (Verced?) Does..."
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Thanks for the info and asking about my daughter. We are doing one more increase since that will be max dose. Will let you know in a week or so. If not then taking her off and trying Banzel. Ugh hate trying all these new meds and keeping her on ones that don’t work. Hopefully one day something will work!