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Trying to get my daughter with a seizure disorder on epidiolex

Epilepsy & Seizures | Last Active: Jul 27, 2019 | Replies (34)
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@595959

He has LGS which is one of the approved syndromes but his is not genetic. He has been on about 8 diff meds and combos. He is 14 and diagnosed at 2.

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Replies to "He has LGS which is one of the approved syndromes but his is not genetic. He..."
Lisa Lucier | @lisalucier | Mar 1, 2019

Hi, @595959 - I wanted to add my welcome to Mayo Clinic Connect. Just wanted to confirm that your son has Lennox-Gastaut syndrome (LGS)? If so, this thread on LGS may be of interest, as well https://connect.mayoclinic.org/discussion/lgs-diagnosis

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