Replies to He has LGS which is one of the approved syndromes but his is not genetic. He…

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Epilepsy & Seizures | Last Active: Jul 27, 2019 | Replies (34)

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@595959

He has LGS which is one of the approved syndromes but his is not genetic. He has been on about 8 diff meds and combos. He is 14 and diagnosed at 2.

Replies to "He has LGS which is one of the approved syndromes but his is not genetic. He..."

Lisa Lucier, Moderator | @lisalucier | Mar 1, 2019

Hi, @595959 - I wanted to add my welcome to Mayo Clinic Connect. Just wanted to confirm that your son has Lennox-Gastaut syndrome (LGS)? If so, this thread on LGS may be of interest, as well https://connect.mayoclinic.org/discussion/lgs-diagnosis