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Trying to get my daughter with a seizure disorder on epidiolex
Epilepsy & Seizures | Last Active: Jul 27, 2019 | Replies (34)Comment receiving replies
Does your son have a genetic disorder related to his seizures? Just curious since it’s “approved” for certain types of genetic disorders.
What other meds has your son been on?
Replies to "Does your son have a genetic disorder related to his seizures? Just curious since it’s “approved”..."
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He has LGS which is one of the approved syndromes but his is not genetic. He has been on about 8 diff meds and combos. He is 14 and diagnosed at 2.