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Trying to get my daughter with a seizure disorder on epidiolex
Epilepsy & Seizures | Last Active: Jul 27, 2019 | Replies (34)Comment receiving replies
@mmas
Since Epidiolex has been approved for Dravet syndrome and Lennox-Gastaut syndrome can’t your Neurologist prescribe it for her for off label use. Most drugs today seem to be used for off label uses anyway.
I assume no other Anticonvulsant or cocktail has been effective. Although Epidiolex is far from the wonder drug some have claimed it to be. It’s effective about 25% of the time. Hardly the miracle drug those of us with Epilepsy were hoping for.
Replies to "@mmas Since Epidiolex has been approved for Dravet syndrome and Lennox-Gastaut syndrome can’t your Neurologist prescribe..."
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Yes, we were trying but my insurance wouldnt approve it and it’s super expensive but....after 2 denials with more appeal they approved it a couple days ago. Will keep you all posted once we start it!