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Mold Toxicity

Autoimmune Diseases | Last Active: Jun 10, 2023 | Replies (135)

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@dayvu

What kind of urine and blood test can be done to find the mycotoxins. As I believe I have mold toxicity. Been to many doctors all to be told nothing they can do. Can the mayo clinic do these kinds of test. I live in Arizona but would definitely like your doctors number see if he knows someone here in Arizona or if maybe I could come there... I'm about to have a lumbar puncture to see if I have mold induced meningitis... looking forward to hearing back

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Replies to "What kind of urine and blood test can be done to find the mycotoxins. As I..."

Hello @dayvu, Welcome to Mayo Clinic Connect. I'm not familiar with Mycotoxin testing but there is some information on the Mycotoxin tests National Institutes of Health website here:

Mycotoxin Detection in Human Samples from Patients Exposed to Environmental Molds
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2680627/

Mayo Clinic also has some information on mold allergy diagnosis and treatment that may be helpful
-- https://www.mayoclinic.org/diseases-conditions/mold-allergy/diagnosis-treatment/drc-20351525

Also found some information from the on urine testing validity that may provide some information for you.

Notes from the Field: Use of Unvalidated Urine Mycotoxin Tests for the Clinical Diagnosis of Illness — United States, 2014
-- https://www.cdc.gov/mmwr/preview/mmwrhtml/mm6406a7.htm

@glenb may be able to provide more information for you on the test. If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

I haven’t heard of anyone getting mold induced meningitis so that is interesting and serious .
Well as far as I know the FDA still has not approved the urine test but my Medicare did pay for it but they would not pay for
The blood test which I plan on appealing . But the specialist told me that if it shows in urine it is in the blood . Dr Alfred Johnson (972) 479-0400 is the one that did my testing . In DFW area Texas