Trouble with everyday realities of diabetes

Posted by Elizabeth @enska, Jan 24, 2019

Hi everyone, I have type 2 diabetes that appeared about 9 years ago. I've had a really hard time accepting the diagnosis as the years have gone by. I have times where I take good care of it and times where I don't. I was wondering if anyone has tips for keeping up with diabetes every day, including taking blood sugar readings, taking meds regularly, eating right, etc. When I think about doing this every day forever, it frustrates and scares me.

Like I said, I've had a very hard time with this. It seems that just the thought of complications doesn't help. Even actual complications don't scare me into compliance. I think I worry that the complications will happen anyway as I get older. Onset for me was only in my late 20s and I fear that after many years battling this, I'll have complications whether I manage the condition well or not. Does anyone know if that's true?

I also experience severe depression, which I think is the main reason I don't care for myself well enough. It's a tough duo of health concerns to have. Thanks for reading!

Interested in more discussions like this? Go to the Diabetes & Endocrine System Support Group.

@trishanna

Hi, everybody. I've just been diagnosed with diabetes type 2 and I've a question. I can't see the dietitian until the end of May, and all my pcp said was 30 grams carbohydrates three times a day, with two snacks of 15 grams. I feel like I've been thrown into the deep end of the pool with no life preserver. I'm just over the prediabetes threshold, am not overweight, exercise regularly, etc. However, I've only one CKD kidney stage 3 and IBSd, both of which require special diets of their own. How much wiggle room do I have dietwise? At least until I can get a handle on all this. And kamama94, I'll be taking my copy of your recipe book with me. One thing I'm not prepared to do is to up my IBSd to ulcerative colitis - at 80, there's a quality of life issue, I think.

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@trishanna, you might be pleasantly surprised at what you can eat. BUT I have to ask you not to take a copy of the cookbook with you because it isn't finished yet and there are mistakes in the rough draft I posted. I posted it as much for feedback from others in the group about the recipes themselves. My doctors still are going over it so I can come up with a finished and final copy and once that's done, feel free to give it to your docs and anyone else who might want it. But let's hold off until then. One other thing I do need to tell you about the cookbook and that is it doesn't contain carb counts but is based on the "old" calorie counts because vegetarians and vegans do consume more carbs than meat-eaters. Later on I may include carb counts in an additional version but they're not in this one.

Let me do this: I'll post the newest draft here in a few minutes and that draft you can take with you if you explain to anyone you share it with that it isn't finished yet and my medical team hasn't finished evaluating it. Give me ten minutes or less, OK?

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Still a draft, now pending medical review and probably will be finalized within a month or so. Meanwhile feel free to use, share, etc., as long as you inform everyone it's not finished and still is under review. Thanks!

Shared files

DIABETIC AND RENAL FRIENDLY ALMOST - Copy (DIABETIC-AND-RENAL-FRIENDLY-ALMOST-Copy.pdf)

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@kamama94

@trishanna, you might be pleasantly surprised at what you can eat. BUT I have to ask you not to take a copy of the cookbook with you because it isn't finished yet and there are mistakes in the rough draft I posted. I posted it as much for feedback from others in the group about the recipes themselves. My doctors still are going over it so I can come up with a finished and final copy and once that's done, feel free to give it to your docs and anyone else who might want it. But let's hold off until then. One other thing I do need to tell you about the cookbook and that is it doesn't contain carb counts but is based on the "old" calorie counts because vegetarians and vegans do consume more carbs than meat-eaters. Later on I may include carb counts in an additional version but they're not in this one.

Let me do this: I'll post the newest draft here in a few minutes and that draft you can take with you if you explain to anyone you share it with that it isn't finished yet and my medical team hasn't finished evaluating it. Give me ten minutes or less, OK?

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Kamama94. You are most kind, but unfortunately my printer is down and since it's a Microsoft malfunction, it will be a while before it's up and running. Also, my appointment with the dietician isn't until May 30. You are most fortunate with pcp, etc. My doctor explained what diabetis was and said goodbye. So, I have no one to discuss diet, etc., with. What I was asking, as an example: If I have 47 carbs at my 30 carb dinner, am I in big trouble?

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@trishanna

Kamama94. You are most kind, but unfortunately my printer is down and since it's a Microsoft malfunction, it will be a while before it's up and running. Also, my appointment with the dietician isn't until May 30. You are most fortunate with pcp, etc. My doctor explained what diabetis was and said goodbye. So, I have no one to discuss diet, etc., with. What I was asking, as an example: If I have 47 carbs at my 30 carb dinner, am I in big trouble?

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@trishanna, I'm not qualified to give medical advice but I can tell you what I would do if I had 47 grams instead of the 30. If it was occasionally I personally would not be too concerned for myself. Counting carbs is as much a pain as counting calories but labels on most food tell you the carb count and there are several websites that can track them for you or at least list the carbs in various foods. One is https://nutritiondata.self.com and another is https://www.diabetesselfmanagement.com and one more is https://www.diabetescarecommunity.ca

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@kamama94

@trishanna, I'm not qualified to give medical advice but I can tell you what I would do if I had 47 grams instead of the 30. If it was occasionally I personally would not be too concerned for myself. Counting carbs is as much a pain as counting calories but labels on most food tell you the carb count and there are several websites that can track them for you or at least list the carbs in various foods. One is https://nutritiondata.self.com and another is https://www.diabetesselfmanagement.com and one more is https://www.diabetescarecommunity.ca

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Kamama94. Thank you so much! I go online as much as possible, trying to learn, and I will. It's just that right now, I'm a bit overwhelmed. Still caretaking my husband, who is not on any diet except like/or/dislike, but physically, it's not easy. I read how all of you have coped, and I'm so impressed!!!!

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@trishanna

Kamama94. Thank you so much! I go online as much as possible, trying to learn, and I will. It's just that right now, I'm a bit overwhelmed. Still caretaking my husband, who is not on any diet except like/or/dislike, but physically, it's not easy. I read how all of you have coped, and I'm so impressed!!!!

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@trishanna, I admit it's a struggle at times but worth it. And you can do it! You go, girl!

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@trishanna

Kamama94. You are most kind, but unfortunately my printer is down and since it's a Microsoft malfunction, it will be a while before it's up and running. Also, my appointment with the dietician isn't until May 30. You are most fortunate with pcp, etc. My doctor explained what diabetis was and said goodbye. So, I have no one to discuss diet, etc., with. What I was asking, as an example: If I have 47 carbs at my 30 carb dinner, am I in big trouble?

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@trishanna I hope your appointment with the dietician goes well. I would try to get in to see a good endocrinologist in the meantime. I am not sure, but I believe the doctor suggests the carb limits, and the dietician helps you to learn how to adhere to the recommendations. 30 carbs is fairly low, I think the usual recommendation is generally 45, but of course can vary depending upon the severity of your diabetes. I did have my PCP handle my diabetes for a while but I am more comfortable with the endo handling it.
JK

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@hotfooted

Just diagnosed with type 2 diabetes last week, but very sick and lost 20 lbs over the previous 2 months. Am dealing with tummy pain and jitters, night sweats, numb tingling feet (when they are not hot and burning!). I'm weak and shaky.. wondering how long this will last until the meds begin to help me. What foods will set best with my tummy? Eating anything usually makes that worse. Looking forward to feeling better! I am 76 years old. Have cut out all sugar and that helped with the feet burning I think. I watch my carbs very carefully and don't seem to crave them. Which vegetables could be upsetting my tummy? I do like veggie soups and make it often. Is cabbage a no no? Tomatos?
Thanks for any help/advice you can offer..

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Hi hotfooted @hotfooted, I am Cheryl cehunt57. I wrote the post just before yours. I’m 62 years old. Since age 18 I’ve been Type 1 diabetic, post pancreas transplant and now type 2 diabetic and CKD (chronic kidney disease). The symptoms you describe weight loss, “tummy pain, jitters, night sweats, numb tingling feet, weak and shaky” can be associated with any type of diabetes &/or the complications of it. You didn’t mention what meds you have been put on. Medications themselves have side effects and could be causing some of these symptoms. It sounds like you could benefit from a follow up appointment with the provider that diagnosed the type 2 diabetes. Describe your symptoms and get more information about your medications. Ask for a referral to a nutritionist for customized recommendations depending on your conditions.

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@cehunt57

Hi hotfooted @hotfooted, I am Cheryl cehunt57. I wrote the post just before yours. I’m 62 years old. Since age 18 I’ve been Type 1 diabetic, post pancreas transplant and now type 2 diabetic and CKD (chronic kidney disease). The symptoms you describe weight loss, “tummy pain, jitters, night sweats, numb tingling feet, weak and shaky” can be associated with any type of diabetes &/or the complications of it. You didn’t mention what meds you have been put on. Medications themselves have side effects and could be causing some of these symptoms. It sounds like you could benefit from a follow up appointment with the provider that diagnosed the type 2 diabetes. Describe your symptoms and get more information about your medications. Ask for a referral to a nutritionist for customized recommendations depending on your conditions.

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Thank you Cheryl, for your response.. I have been taking Metformin Hydrochloride 500mg tablet with meals/12 hours apart and Pioglitazone Hydrochloride 15mg tablet 1/day.. only since 4/22/19... so I'm brand new to these meds and Diabetes. My next appmt with the doctor is in 5 weeks. And I will see Nutritionist in one week..
I'm being very careful about the carbs I eat and notice some improvement in my burning feet now.. I do wake up after about 4 hours of sleep every night and have to eat something and wait for my feet to settle down again before I can get back to sleep.. then sleep another 4 hours or so..
I'm looking at buying a walker with a seat to make getting around the house easier. If anyone has recommendation for best ones, please let me know.. The GoPlus Rollerator has good reviews on Amazon.. The Neuropathy in my feet makes them not bend anymore and I'm fairly clumsy, get unbalanced sometimes..
My husband thinks I will improve a great deal with all these issues as we get Diabetes under control.. I wonder if the Neuropathy will improve... I hope so!
It's so good to have access to this forum and the information and advice, especially the folks who have been handling their health issues a lengthier time.. Experience is the best teacher and I so appreciate your helpful and understanding knowledge and compassion.. Thank you so very much..

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@cehunt57

Hi hotfooted @hotfooted, I am Cheryl cehunt57. I wrote the post just before yours. I’m 62 years old. Since age 18 I’ve been Type 1 diabetic, post pancreas transplant and now type 2 diabetic and CKD (chronic kidney disease). The symptoms you describe weight loss, “tummy pain, jitters, night sweats, numb tingling feet, weak and shaky” can be associated with any type of diabetes &/or the complications of it. You didn’t mention what meds you have been put on. Medications themselves have side effects and could be causing some of these symptoms. It sounds like you could benefit from a follow up appointment with the provider that diagnosed the type 2 diabetes. Describe your symptoms and get more information about your medications. Ask for a referral to a nutritionist for customized recommendations depending on your conditions.

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Hi Cheryl.. Since I'm only just beginning to learn my way around this forum, I just found and read your writing about your own health travels.. a very long road for you.. I feel like I've found a new friend in you.. What can I, a person who is only recently feeling sickly, say to one who has been dealing with so very many much more severe health problems for such a long long time.. My heart softens and I am admiring your courage and strength, but that's no help for you.. I will pray for you and ask for Jesus to do what he does for me - When I say "I love you, Jesus", he makes me feel soft and warm and loved.. I can feel his arms around me.. such a wonderful feeling..

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