← Return to Small Fiber Neuropathy?

Discussion

Small Fiber Neuropathy?

Neuropathy | Last Active: Feb 12, 2023 | Replies (214)

Comment receiving replies
@jakedduck1

NEVER stop any Anticonvulsant which is what Gabapentin and Lyrica are if you have a seizure disorder. Could be deadly. Don’t think that is an exaggeration. Before I knew better I quit and lost 15 years of my life, 8 months in a coma and nearly my life. Never stop any medication on your own.
Jake

Jump to this post


Replies to "NEVER stop any Anticonvulsant which is what Gabapentin and Lyrica are if you have a seizure..."

@jakedduck1

I'm glad that I hadn't made it up to full dose of Lyrica when I had to stop it. I stopped it immediately, but in the hospital. Many, if not most, meds need supervision or some kind or protocol to taper off them. Some are very difficult to stop. I think that many have said here in Connect that Effexor is a particularly tough one.

Jim

Jake, I'm very sorry to hear about this time in your life.

Your warning is a very important one. I've done a ton of research on Gaba and based on what I've seen, no one should ever stop taking it cold turkey - even if they do not have a seizure disorder.

The first medication my Neurologist suggested was Effexor and I IMMEDIATELY declined. I was on it a decade ago to treat depression, and the side effects were horrendous (including those during the weaning process). Many people say the same things about Gaba - so I knew it could be bad before I started to take it.

Truth be told - there do not seem to be a lot of pain management options for nerve pain, and quite frankly I am tired of being in pain so I'm willing to roll the dice on this one. I am watching carefully for side effects and monitoring how well it manages the pain. Eleven days in and so far so good - but my doctor started me off on 100 mg for 7 days; 200 mg for 7 days, then 300 mg for 14 days. I take it only at night and need to go back and see him before the end of the month. I have been sleeping through the night pain free (yipppeee!) and cannot wait to be able to take it during the day.