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Small Fiber Neuropathy?

Neuropathy | Last Active: Feb 12, 2023 | Replies (214)

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@albiet

I’m in a bad place as this is confusing me. 10 years ago I was told I had SFN and had tinglings . I also have herniations from a car accident in 2004 throughout my back but they haven’t really bothered me for years. Been feeling decent for years. Last year I started to have weird sensations in my right arm that came and went. It kept getting worse and my legs started buzzing. Now almost a year later most of my body feels buzzing or vibrations . My skin or muscles feel like they are pulling/ tight. And for the last few months my teeth have been chattering. Very confused on what drs to see. Does this sound familiar to anybody and what have you done.

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Replies to "I’m in a bad place as this is confusing me. 10 years ago I was told..."

Hi @albiet, I'm sorry to hear you are in a bad place. Neuropathy and it's sypmtoms can be confusing and cause a lot of anxiety along with the pain. There is another discussion with a similar name where your questions will have more visibility. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion where it will receive more visibility.

> Groups > Neuropathy > Small Fiber Neuropathy?
-- https://connect.mayoclinic.org/discussion/small-fiber-neuropathy-3/

Have you discussed your latest symptoms with your doctor? I'm wondering if the hernations you mentioned from the car accident may be causing nerve compression?

There is another discussion that you may find helpful
> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
-- https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

I saw the neuro who 10 years earlier tested me for SFN . I saw her 3 times - last oct, nov and February 2019. She took neck mri and another test that stuck needles in my leg and I did PT . Nothing helped and things get worse . She told me very coldly nothing She could do, not even recommend a internist or anyone else to start with.
I ended up seeing 2 other neuros, the first was a dr that does neuropathy and he took some tests and then asked me for a copy of the SFN test from 10 years earlier. None of his tests showed anything and said if I want some Neurontin or lyrics he could do that. In March Then I saw also 10 years prior and she took a brain mri and thoracic, but never looked at, just the memos. It did not show ms legions but thought I should go to an ms dr.
I’m basically sitting with an appointment for an ms dr on Tuesday but thinking of canceling since I’m not going back to the dr that recommended going to him. Also I’m concerned as he is in the same practice as the neuropathy dr. I’m totally confused as this continues nonstop. Help.