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elsa (@elsa)

Small Fiber Neuropathy?

Neuropathy | Last Active: Jan 16 7:39am | Replies (207)

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@somisgirl

Has anyone been diagnosed with idiopathic small fiber neuropathy? Not caused by diabetes

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Replies to "Has anyone been diagnosed with idiopathic small fiber neuropathy? Not caused by diabetes"

Hello @somisgirl, Welcome to Connect. There is another similar discussion where your post may receive more visibility. I'm tagging our moderator @lisalucier to see if we should move your post to the following discussion where you can meet other members discussing small fiber neuropathy.

> Groups > Neuropathy > Small Fiber Neuropathy?
https://connect.mayoclinic.org/discussion/small-fiber-neuropathy-3/

Idiopathic means it's not caused by diabetes since they are not able to say what the cause is. I have idiopathic small fiber peripheral neuropathy that my neurologist thought was probably hereditary. I only have numbness in my feet and just above the ankles with my neuropathy.

Have you been diagnosed with idiopathic small fiber neuropathy? Are you able to share your symptoms?

Hi, @somisgirl – I wanted to add my welcome to Mayo Clinic Connect and also let you know I've moved your post to the existing discussion on small fiber neuropathy @johnbishop mentioned so you can connect with others with the same diagnosis like @helennicola @jager5210 @geegie @steeldove @wisfloj and others.

I have just two days ago
Just joined the discussion group

Yes I have.

I am in exactly the same boat! Runner, hiker, Paleo diet, idiopathic for SFN. Started in April this year. Just diagnosed with SFN. Devistated. Ran mountains for years…20,000+ steps a day. Consideratung moving to cooler climate area. Pam

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