← Return to Small Fiber Neuropathy?
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Replies to "Has anyone been diagnosed with idiopathic small fiber neuropathy? Not caused by diabetes"
Hi, @somisgirl - I wanted to add my welcome to Mayo Clinic Connect and also let you know I've moved your post to the existing discussion on small fiber neuropathy @johnbishop mentioned so you can connect with others with the same diagnosis like @helennicola @jager5210 @geegie @steeldove @wisfloj and others.
I have just two days ago
Just joined the discussion group
Yes I have.
I am in exactly the same boat! Runner, hiker, Paleo diet, idiopathic for SFN. Started in April this year. Just diagnosed with SFN. Devistated. Ran mountains for years...20,000+ steps a day. Consideratung moving to cooler climate area. Pam
Yes. I was diagnosed last month. Active with Pickleball, Hiking, etc. Not sure what future will bring and am very scared.
Hello @somisgirl, Welcome to Connect. There is another similar discussion where your post may receive more visibility. I'm tagging our moderator @lisalucier to see if we should move your post to the following discussion where you can meet other members discussing small fiber neuropathy.
> Groups > Neuropathy > Small Fiber Neuropathy?
-- https://connect.mayoclinic.org/discussion/small-fiber-neuropathy-3/
Idiopathic means it's not caused by diabetes since they are not able to say what the cause is. I have idiopathic small fiber peripheral neuropathy that my neurologist thought was probably hereditary. I only have numbness in my feet and just above the ankles with my neuropathy.
Have you been diagnosed with idiopathic small fiber neuropathy? Are you able to share your symptoms?