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Hello @somisgirl, Welcome to Connect. There is another similar discussion where your post may receive more visibility. I'm tagging our moderator @lisalucier to see if we should move your post to the following discussion where you can meet other members discussing small fiber neuropathy.
> Groups > Neuropathy > Small Fiber Neuropathy?
-- https://connect.mayoclinic.org/discussion/small-fiber-neuropathy-3/
Idiopathic means it's not caused by diabetes since they are not able to say what the cause is. I have idiopathic small fiber peripheral neuropathy that my neurologist thought was probably hereditary. I only have numbness in my feet and just above the ankles with my neuropathy.
Have you been diagnosed with idiopathic small fiber neuropathy? Are you able to share your symptoms?
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Yes, I have been positively diagnosed with this. No one in my family has it...I am a 60-year-old woman, very active and in otherwise excellent health. This started with some pain in my feet which I assumed were a foot issue! Went to a podiatrist (two, actually) and got new insoles. Things just kept getting worse. Pins and needles, burning in both feet radiating up my legs. That's when my podiatrist sent me to have the nerve conduction tests. I had two and both came back normal. I had extensive blood work done, everything normal. Next was two "punch biopsies:, 6 months apart, that showed progressing small fiber degeneration. I now take 600mg Gabapentin 3X a day and a compound cream 3X a day to try to keep the symptoms at bay.
I am 5'11", 132 pounds. I have been a avid gym member for over 20 years. My diet is very healthy. .I have never been on any long-term medication in my life until now, and I am desperate to find out the cause rather than just treat the symptoms. And I do not want to take any opiods. I just want to find out if there is anything that I can do to reverse this condition. And yes, I have been on many of the nerve-regenerating vitamins with no results.