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Process for getting Mixed Connective Tissue Disease (MCTD) diagnosis

Autoimmune Diseases | Last Active: May 30, 2023 | Replies (5)
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@ohiokavr

Thank you! I didn't know there was a group. My doctor looked very hard to find outside rheumatologists covered by my insurance, but couldn't find one.

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Replies to "Thank you! I didn't know there was a group. My doctor looked very hard to find..."
annewoodmayo | @annewoodmayo | May 30, 2023

Hi Ohiokavr!

This is about your post about the "outside rheumatologists." I'm not sure what you mean by "outside," but it seems really, really odd to me that your insurance company doesn't cover rheumatologists.

If I were you, I would call the insurance company's customer service yourself and ask them about rheumatologists. And/Or check your insurance company's website for them.

I live in suburban Philadelphia, PA, where we have lots of doctors. Maybe it's different where you live, but it still seems really strange to me that your doctor couldn't find you a rheumatologist.

Is it possible that your doctor is mistaken about your insurance coverage? Unfortunately, you might need to do some "leg work" yourself on this one.

I don't suggest this lightly. I know from personal experience how hard it can be to deal with even the simplest tasks (shower, anyone?) when I don't feel well.

Best wishes and very good luck to you!

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