Hello @rachelpatrick22, welcome to Connect. I'm sure it's different for each of us. I didn't think the testing was that hard for me. The thing I learned was it's not helping you to wait before trying to get a diagnosis.

I had idiopathic small fiber peripheral neuropathy for 20+ years before I got a diagnosis mainly because the first doctor I complained to about numb toes/feet told me it was probably nerve damage and they can do some tests to find out. I asked if it's nerve damage what can you do and when he said nothing I let it go and just lived with the symptoms until a couple of years ago. Then before I could meet with a neurologist he ordered some tests for me - EMG, MRI and some blood work. That was pretty easy but took a little while to get it all done.

I also have polymyalgia rheumatica (PMR) which is currently in remission. The first occurrence I lived with the pain for about 3 months before getting it diagnosed and treated. I met with a rheumatologist and had a SED rate test before his exam. He gave me a diagnosis and sent me on my way with a prescription for 20 mg prednisone. It took 3+ years to taper off of the prednisone and the PMR went into remission for 6 years. The second time the pain came back and I knew right away it was PMR and the doctor ran the SED rate test to confirm and it was back on prednisone for a year and a half before the PMR went into remission again.

What symptoms do you have?