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rgolia13 (@rgolia13)

Small fiber neuropathy

Neuropathy | Last Active: Jul 27 7:12pm | Replies (22)

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@clairecas

Hi @rgolia13
I've severe burning of hands/ feet. It also can be anywhere on my legs, toro, arms (in small area's) at different times.
I can not tolerate any of the mentioned medications.
I do get significant relief from medical marijuana oil and vape.
It does not make me "high" unless I take and do not eat. Ie: breakfast.
I had to try several brands. The oil and vape are from medical marijuana supplier, not over counter or online products.
I still get flair ups that usually last about 3~4 days. When that happens, I continue my dosing and use ice packs. It has disabled me from working.
Still worth the relief. But I do get pretty regular burning on legs,arms and torso. Usually short lasting as my hands/ feet/lips are daily.
Hope this helps.

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Replies to "Hi @rgolia13 I've severe burning of hands/ feet. It also can be anywhere on my legs,..."

@clairecas Good morning. Thank you for the “introduction” to your journey into the small fiber neuropathy world. We share the same commitment to medical marijuana for pain control. I appreciate your warning about not medicating on an empty tummy. Please tell us more about the flares. Do you know what triggers them? Do you notice that symptoms are stronger with low barametric pressure? And finally, what dosages are you using for tinctures? 2:1? Have you tried a 3:1 or other dosage balm for your hands? Oops, one more question. What do you use to combat the “burning “, especially in the torso? Does it interrupt your sleep? Be safe, be free of pain even if it is for just an hour? Chris