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Need Patients' Experience with Mayo Clinic. Is it worth it?
Visiting Mayo Clinic | Last Active: 1 hour ago | Replies (136)Comment receiving replies
I expected more out of my Doctor at Mayo. He told me my MRI looked good however I got the report from Simon Med and it said I had a 1/4cm x 9mm x 4mm tumor. I don't know why the doctor didn't go over that and what it meant to me but he didn't. I was told I'd have my temozolomide by last Wednesday and still haven't heard a thing! I was told I'd get paperwork through the Portal right away. Then found out they can't send attachments through the portal! So I'm really not impressed at all:(
Replies to "I expected more out of my Doctor at Mayo. He told me my MRI looked good..."
Hopefully, this is an anomaly and will be quickly rectified. I was on Temozolmide and missed my first dose due to my insurance company dragging their feet. That drug was harder in me than the infused chemo. Good luck with it
I'm sorry you had a bad experience. Did you contact them about your temozolomide? Your paperwork should be able to be found on the portal under notes and documents. Did you try looking there?
JoDee
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bjh369, This does sound confusing and disappointing for you. I suggest that you contact the office that you were expecting to hear from. There should be a phone number on your paperwork where you can reach someone about this.