Hi @nycdave7
I would love to share a bit about my experience and I like to say absolutely without a doubt Mayo Clinic is worth every second of your time. I was seen be many top notch physicians at multiple locations including the Cleveland Clinic where one of my nephrologist insisted I go. But I received no explanation as to why my blood pressures were running on average 300/220 even after 4 hospitalization and Dozens of tests. At that point I didn’t care what the answer was I was just looking for A answer. I woke up one morning went to my see my routine scheduled physical therapy appointment (Shoulder issues) and I felt terrible he took my blood pressure which was higher than his cuff would go. With tears in his eyes he said “one of these days your going to die on my table”. I packed my bags and drove to Rochester!! In hine sight that was not smart!! But I had been their in the past and new I could go on standby to see a doctor. I ended up in St Mary’s Hospital ER with a mild heart attack sustained during my 5 1/2 hr drive up there. I was told by multiple hospital staff that I was extremely lucky because I was seen by the very best of the best which happen to be available upon my arrival. I am very blessed!

I am not saying to do that in anyway and everyone’s experience is different. I have been to Mayo Clinic many many times but 4 separate time frames and 4 different major issues. I live in Illinois and it’s a well worth it 5 1/2 hour drive one way. So now my Mayo Nephrologist manages my care with some help from my local endocrinologist.

My diagnosis was primary hyper- aldosteronism and discovered I had a tumor in my right adrenal gland. Adrenal glads produce hormones that control blood pressure. Multiple hormones including cortisol, renin and aldosterone. Anxiety, stress, and sodium all effect cortisol levels. Mayo Clinic specifically has numerous case studies on this very topic. My doctor there particularly has several he has written. Here is a link to some of his...
https://www.ncbi.nlm.nih.gov/m/pubmed/
Here is a link to request an appointment http://mayocl.in/1mtmR63 . If you request and appointment then the Nephrology department will call you to do a phone interview and discuss your case if you both feel it is something you want to do and they will have a doctor review and schedule an appointment. It is worth the phone interview.
https://www.mayoclinic.org/departments-centers/nephrology-hypertension/minnesota/overview
Has you physician given you any diagnosis? Has the physician discussed the adrenal glands and their effects on blood pressure?

Curious
Dawn