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Confused about Stiff Heart, Diastolic Heart Failure, or HFpEF?

Heart & Blood Health | Last Active: Nov 23 7:36am | Replies (63)
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@kanaazpereira

Hi @barbarajane @cynaburst @cynthiamary @lynnkay1956 @medic7054 @evelyn247 @c410djh @jigglejaws94 @thankfulalways @mpeters @sammysky @bjanderson @jwoj @brittalisse @pfazenbaker @pepper1311 @predictable @thankful @hopeful33250 @harmonybentley @mzhp1988 @lioness @wangs @gibbs @soloact,

I’d like to invite you to join this discussion about heart failure with preserved ejection fraction or HFpEF – also known as stiff heart or diastolic heart failure. Share your experiences, ask questions, and let’s support and learn more from each other. Please drop a note to say hi and introduce yourself.

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Replies to "Hi @barbarajane @cynaburst @cynthiamary @lynnkay1956 @medic7054 @evelyn247 @c410djh @jigglejaws94 @thankfulalways @mpeters @sammysky @bjanderson @jwoj @brittalisse @pfazenbaker..."
lioness | @lioness | Jan 19, 2019

@kanaazpereira Thank you for inviting. I only had a triple by pass in 1996 and since then I have had no major problems with my heart I am on Losartan 100 mg for my Blood Pressure and Pravastatin for my cholesterol .Just had a angiogram and heart vessels are all intact .Have always ate healthy and my cardio surgeon told me no more red meat so I still don't eat red meat .Exercising all my life nothing strenuous now at 76 I started a chair exercise program using You tube videos

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hnutjb | @hnutjb | Jul 25, 2022

Hello, I'm Jeff and suffer with Myocardial Bridging since 30 (now 60) and up until this year it was all anxiety and asthma and sleep apnea and GERD .... ridiculous. Recently (last Month) I had a Cardiologist here in Vegas tell me how MB was "OVERDIAGNOSED" and listened to my heart - took BP and cut my lisinopril in half. (end of that doc). Prior to covid I had a Stanford Cardiologist do a cath and said I had MB and sent me home with some medz. No big deal. After moving to Las Vegas I began to study MB and found that it was directly connected to my restrictive cardiomyopathy and found Dr. Ingrid Shnittger at Stanford (right down the hall from the idiot who told me I had MB and prescribed the wrong medz to me.) Ego I guess... all he had to do is refer me down the hall to someone who has been leading the charge for over a decade. Finally get to talk with Dr. Ingrid S. and she got me on the right medication and my BP is perfect since. Still have symptoms and in the process of getting VA to refer me to Stanford or Mayo Clinic (as Mayo is number 1 with 3 other problems I have. I have yet to find a doctor at Mayo Clinic who leads the MB study. Dr. Joanna Gabriel is the go to doc at Cleveland Clinic and as I mentioned Dr Schnittger at Stanford but that's it as far as I can see.
Knowing Mayo Clinic is #2 or #3 in Cardiovascular Diseases I'm sure some doctor there is heading up new patients there. Who might that be? I registered and sent in all my conditions to Mayo Clinic and suppose to hear back from someone there with a plan or something. Anyone know Dr. MB at Mayo Clinic??

Stanford has performed over 350 deroofing surgeries and has lost know one since I last spoke. I think this a good record but compared to what other?? Anyone who can point me to the Mayo MB doctor .... I will send a new heart. 🙂
Jeff

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