Connect
Comment receiving replies
I'd also like to add my welcome to @anotherfinemass. (You can edit your post up to 2 hours after posting.)
It can be a challenge to find experienced specialists for a rare cancer type, such as thymic cancer. It is obvious that you are someone who does your research. Your questions re surgery and a surgeon's experience are good ones. At Mayo Clinic, you have the advantage of physician team experience, whose collective knowledge is greater than any individual. All patients are seen by a team of experts. Some, if not all of your questions, can be answered prior to an appointment.
I'm tagging fellow members who have experience with thymic cancer and finding care. @shelleyfl35 @beitelash @allisonsnow @andylevine @lizah @jacquie1 @shilo14 @shaycoe12 @annesgl @shaycoe12 @jean25 @gailkattouf may have helpful tips in addition to the experiences they shared in this discussion:
— Anyone out there with Thymoma/Thymic Carcinoma https://connect.mayoclinic.org/discussion/anyone-out-there-with-thymomathymiic-carcinoma/
Anotherfinemass, do you have a center that excels in cancer care near you?
Replies to "I'd also like to add my welcome to @anotherfinemass. (You can edit your post up to..."
Connect
Hello @colleenyoung
Thank you for your welcome, your encouragement, and your referral to others!
As for having a center that excels in cancer nearby, not really. I do have a couple of fine medical centers that I would have no reservations about going to for almost any other condition, but the dialogue surrounding the operation that is indicated for my condition was not reassuring. I'm confident that this is not a reflection on the medical center, but more an indication of how rare this particular type of tumor is - and how large mine has become. Thus my investigation into more specialized organizations (like the Mayo Clinic) and my curiosity with the process of evaluating surgeons.
You mentioned that some if not all of my questions could be answered prior to an appointment at Mayo. How exactly would one go about engaging the organization with those questions?
Thanks in advance.