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Glioblastoma Grade 4

Brain Tumor | Last Active: May 27, 2023 | Replies (25)

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@dawn_giacabazi

Hello @bjh369
I am so sorry you have to make this journey! But there is some hope with new trials and studies they are have some success. My mother passed away several years ago from Glioblastoma (GBM) and treatments were so limited because it was not discovered until very late stage 4. But I have a patient we are currently seeing with stage 4 GBM. 60% of the tumor was removed and she has completed her first round of temozolomide and 30 straight days of radiation and a treatment of TTFields.

In 2015, the Food and Drug Administration (FDA) approved a portable device called Optune for the treatment of glioblastoma, to be used in combination with temozolomide.

The device consists of transducer arrays that are placed on the patient's shaved scalp, and these deliver low-intensity, alternating electric fields called TTFields.
We are seeing encouraging results in this early phase. I would encourage at least discussing the option with your oncologist.

Praying for you & your medical team.
Dawn

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Replies to "Hello @bjh369 I am so sorry you have to make this journey! But there is some..."

So very sorry for your loss. I will be starting on the Optune device the end of February to try to give me a few more years.