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Difficult case, several diagnosis, no solution yet
Autoimmune Diseases | Last Active: Jul 29, 2023 | Replies (98)Comment receiving replies
<p>Feels like I’m dying, autoimmune disease?</p><p>About a year ago I was having symptoms of weak/numb limbs accompanied with headaches and dizzyness that seemed to come and go. Recently in the past two weeks it has intensified with me I’m waking up to feeling very weak, difficulty walking, headaches, pressure in the back of my head and in my ears. I have vertigo and dizzyness and I feel off balance. I have episodes where parts of my body go numb, and my face gets red, I get so weak I can barely standup or move. I’ve been to the ER and unfortunately they couldn’t help as tests came back normal and gave me anxiety medication. I have had brain spine and neck MRIs and blood work but nothing has shown up, does anyone have insight? Thank you</p>
Replies to "Feels like I’m dying, autoimmune disease?About a year ago I was having symptoms of weak/numb limbs..."
You said you've had blood work, but do you know if your thyroid was checked? I would assume it has been given the symptoms you are experiencing, however before my thyroid disorder was diagnosed many of these same issues you are having were mine. By the time I saw a doctor who suspected this might be the cause I had progressed to the point that I would actually go from being dizzy to blacking out and momentarily losing eyesight. A thyroid that does not work can cause many, many issues throughout the body. This may not be what is causing your symptoms, but just thought it might be something you may want to have checked out further if your doctors haven't tested you previously.
@joey808 have you been seen by a neurologist? Funny how doctors write off anything they can’t figure out, as “anxiety” - especially if you have a history of anxiety or panic attacks! They look no further! 😬
I wish I can help you. I have three autoimmune diseases and have been working with this for many years. Getting on too the positive side: There should be more research in this field of medicine. Perhaps a new group of people who are dedicated and can get the funding needed. This is a hard trail to walk on but life can still be enjoyable at times and these times should be cherished. Love yourself and treat yourself with kindness. With all the best Peach
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Hello @joey808,
I'm sorry to hear about these very uncomfortable symptoms you are having with no diagnosis or treatment plan. That is very frustrating, to say the least!
From what you have described, it sounds like a work-up with a neurologist and an ENT specialist would be a good place to start. Have you seen either of these specialists, yet?
Is there a family history of this type of problem? I'm also wondering if you have other health problems or if you are taking any new medicines which might be contributing to these symptoms.
I look forward to hearing from you. Will you post again with an update as to how you are doing?