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@elderdiana

This is elderdiana. I do not seem to know how to reply on my device. If this message gets to bt56 I also am being treated for GCA since summer of 2015. I take prednisone and methotrexate, have blood tests every 6 weeks, got down to 3 mg from starting at 60 mg, then back up to 5mg, comin g down again monthly, fingeres crossed. I think I should see another Rhumy for second openion. My doctor of 3 + years wants me on a new drug that is not even approved intravenously for giant cell artrritis. But life goes on.

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Replies to "This is elderdiana. I do not seem to know how to reply on my device. If..."

Is the new drug he wants you to go Actemra? I have been on that for almost one year. The thought was since I had flare ups every single time I tried to lower my prednisone that the Actemra would make that process easier. Well, I was able to get off of my methotrexate and leuvocorin completely since beginning Actemra, but although I have gotten to a lower dose of prednisone (currently 7.5mg) I am also having a flare up so I know I should go back up but going to see the doctor first to see if he agrees