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Shingles and Postherpetic Neuralgia and Pain

Brain & Nervous System | Last Active: May 7, 2023 | Replies (189)

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@hopeful33250

Hello @paulbklyn and @jerid and @patsy0315

Only as you are comfortable doing so, I was wondering if you could share with me what your symptoms are for chronic PHN? Do you have pain, if so what is the pain like, i.e., pins and needles, sharp inner pain, skin pain? I'm asking because while I'm just starting my treatment with recent-onset Shingles my pain seems to be a combination of right-sided deeper pain but also skin discomfort that feels like a sunburn or chapped skin. Does this sound familiar to any of you?

If you have another type of discomfort and are comfortable sharing these details, please describe them.

My neurologist has advised taking the Gabapentin as needed and in the amount needed. I currently take 300 mg at bedtime if I'm having discomfort when I first lay down. I have a bottle of 100 mg so if I want to take less I can. Would you mind sharing what dosage you take?

Right now I'm taking a course of Prednisone and the symptoms are so lessened that they don't require any Gabapentin. I'm not sure how long that will last after I taper off the Prednisone. Were you ever treated with Prednisone at the beginning of your Shingles treatment?

I appreciate you sharing your experiences. It will help me to understand this difficult diagnosis a bit better.

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Replies to "Hello @paulbklyn and @jerid and @patsy0315 Only as you are comfortable doing so, I was wondering..."

@hopeful33250 Teresa, I'm very sorry to hear you are experiencing this pain. I wish you the best going forward with treatments.
Be well,
Rachel

Thanks all. Seems another shot of shingles vaccine is needed. Fyi after getting shingles despite vaccine. I got a torn retina spot where shingles was.