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DiscussionShingles and Postherpetic Neuralgia and Pain
Brain & Nervous System | Last Active: Nov 28 5:21am | Replies (190)Comment receiving replies
Replies to "I’m in my 15th year of dealing with PHN after shingles. Has anyone used stem cell..."
Hi @gmaw4, I see that you found the discussion titled, "Shingles and neuropathic pain." I moved your post to this discussion as well so the members discussing this topic could see both of your messages. You mentioned a few other diagnoses as well, I'd like to share a few other discussions you may find worth your time to read through and participate in where you feel comfortable:
- Fibromyalgia pain, https://connect.mayoclinic.org/discussion/fibromyalgia-pain-28e002/
- Bones, Joints & Muscles (group), https://connect.mayoclinic.org/group/arthritis-and-joint-conditions-268850/
I have tried most everything but stem cell. Good luck.
Hello. I am on year eight of PHN. I have never heard of anyone actually getting better. I have tried numerous treatments, oils, creams, diets, surgeries, etc. I am desperate and all of my doctors are dead set on the opiates. They don't want to lose their licenses. I an miserable and am going to see another surgeon in three weeks. Is there anyone out there with suggestions beyond the normal scope (spinal cord stimulator, gabapentin, lyrica, etc.) I have tried all of them.
Hi @gmaw4 I also have nerve pain after having shingles in the left leg 9 years ago. I am on gabapentin 300 mg x 3 at bedtime. Doesn't really help that much. What else is there? I also take paramipexole 0.5 MG 1 morning and 2 at bedtime. I also have chronic pain from neck to lumbar spine. Needless to say I don't get much sleep.