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Shingles and Postherpetic Neuralgia and Pain
Brain & Nervous System | Last Active: May 7, 2023 | Replies (189)Comment receiving replies
I had shingles in 2004 and have chronic pain. Spend most of my day in bed, in pain and am exhausted. New pain management doctor said I should stop taking methadone. I did. Also stopped Norco, Lyrica, Cymbalta... everything except vitamin B12 monthly injections. I used a spinal cord stimulator for 5 years and had it removed. I’ve been on Medical Marijuana since 12/28/2018. Not a great help after one month. Will continue. Now checking into Stem Cell Therapy. It’s been difficult finding someone with ongoing shingles pain. After 14+ years you are the second person I’ve located. Mine is on the right torso front, side and back. It is the complete area. I’ve had many nerve ablations, injections, appointments with “healers”, chiropractors, acupuncturist and neurologists. My right side spasms often and you can see where the side draws in when this happens. I’m just sorry you are so young. Have you checked into Stem Cell Therapy? I use a cream that has THC and CBD oil. Seems to help a bit. Also tried a product called NERVE RENEW - no change. I also have Crohn’s Disease, fibromyalgia, osteoarthritis, fatty liver... Still hoping to find pain relief.
Replies to "I had shingles in 2004 and have chronic pain. Spend most of my day in bed,..."
Chronic pain is very difficult to deal with, you mentioned you had been to Chiropractors, have they ever place you on a hydro therapy message table? This could be very beneficial for your Chronic pain, as well as relaxed the body and mind.
I am here for you. I am miserable and on year six. I have tried numerous treatments and meds. I am in bed all day everyday. I had about 12 or so shingles outbreaks. At around #6, I developed PHN. I feel hopeless. I just hired a part-time caregiver. My grown children help but it's not enough. I hurt 24/7.
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@gmaw4: Agree, very hard to find someone in a similar condition. The one with the Shingles is my daughter. She got them at 21, now 34. The pharmacist couldn't believe it and asked to see the rash that spread around her thoracic back area, before he would fill anything. She has been through much of what you have been through.
She actually had cardiac ablations for Wolfe White Parkinson's Disease.
She is married, and her husband couldn't afford any kind of extra expense related to stem cell therapy....I pay for all her asthma and pain medications as it is. She does use marijuana in the AM, and then the Oxy compound her pain management Dr. has made in Mass. and mailed to her in the evening.
She teaches Yoga, and that helps her pain somewhat. Nice, only in a symbiotic way, to know there is someone else in the same boat. I pray you find some relief.