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Shingles and Postherpetic Neuralgia and Pain
Brain & Nervous System | Last Active: May 7, 2023 | Replies (189)Comment receiving replies
I had trigeminal nerve shingles six years ago, I’m luck I’m not blind. I ended up with severe itch, eye, forehead to the town of my head which I still suffer with today, it’s horrible I never get a full nights sleep. I saw neurosurgeons at Johns Hopkins in Baltimore, had nerve block done walked out itching my head and crying. So they put me on Lyrica which really did not help bu5 I countinued to take it til 10 months ago when I decided to come off it because I lost six teeth. Now I suffer with severe withdrawal panic, anxiety and agoraphobia. I had to go to a therapist because of suicidal thoughts, but I’m doing much better. I don’t like pharmaceutical drugs anymore, my suggestion for your daughter would be either medical marijuana or maybe CBD oil or CBD gummy’s without THC which you can buy anywhere or order on line. I’ve been using this and it really helps along with the vitamin GABA calm which really has worked numbers. If she chooses to stay in the pharmaceutical drug then I would call the maker and see about getting a coupon to help with the cost. My Lyrica was $300 a month and I got a $30 coupon for a year which saved me a lot of money.
Replies to "I had trigeminal nerve shingles six years ago, I’m luck I’m not blind. I ended up..."
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I have a lot more than that , just need the time to concentrate ,and offer along experience with symptoms are 24/7 , medications ,mistakes ,pain ,cost which unbeatable.i am trying to go to Mayo Clinic as my last resort . Cost and Covid are, the problem .
However , Generic medications somehow make my life worst , simply doesn’t work on me . Lyrica ,antidepressants,clonazepam ,are main medication.my advise will be posted ASA I can , including how this whole thing changed my life .
It started with shingles while in Europe , no clear diagnoses due to the Nr of symptoms and burning sensations , head ,back ,legs and hands . Neurologists , that I have seen ,??? Just not lucky at all . My primary is great , but he can only do so much .had all the scanning possible . All the best to all of you ,hoping you will recover soon .i feel bad for those who have to wait between appointments, can’t afford the medication which much cheaper abroad.God bless