← Return to Prolonged phenobarbital usage and connection with dementia?

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@jakedduck1

@triplets5
I replied to you but apparently it didn’t post.
I’ve taken Phenobarbital for 51or 52 years and have been drowsy with balance and memory issues ever since. Although those are common symptoms of virtually all Anticonvulsants I’ve never had an aura. I shouldn’t say never, I may have experienced Focal Aware seizures, previously known as Simple Partials.
Hope your feeling better,
Jake

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Replies to "@triplets5 I replied to you but apparently it didn’t post. I’ve taken Phenobarbital for 51or 52..."

@triplets5. I also have been on phenobarbitol for about 50 yrs already feels like 30. Time flies.
And even though I did feel a little foggy had an experience some problems learning and now that I am 60 I have memory loss but similar to others my age I have been reading lately to see if I have her to see the correlation between Fina Barb or epileptic seizures and dementia now they say it could be from the Fina Barb other patients I hear that however also seizures in itself could be causing any dementia the point is I am not going off of phenobarbital because that mean nothing is worth having seizures again or risking horrible side effects from other anticonvulsants I feel phenobarbital is pretty mild I’m grateful that it is the very first thing they gave me after my first seizure from an injury and it has worked all these years as long as I take it regularly don’t miss doses and eat properly and get enough sleep and don’t stress too much I did have some more seizures growing up if I missed the dosages or I was doing foolish diets and they were at that time of month as well so that’s also another factor but yes overall I’m really happy with Fina Barb it is hard to have such low energy at times but I feel like as long as I go on a little bike ride that really helps with my Energy level and depression and honestly at 60 anything could happen any day so I’m certainly not going to change anything about my phenobarbital just because I’m a little forgetful so are people that don’t have seizures and I would imagine most people with seizures of memory problems they take a toll on the brain but yes I am staying with my Fina Barb I know someone who’s doctor changed her medicine at age 50 and she has never been able to control her seizures since so no way would I change