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Prolonged phenobarbital usage and connection with dementia?

Epilepsy & Seizures | Last Active: Apr 26, 2023 | Replies (23)
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@triplets5

I just had same issues, they did an MRI and I have a left temporal small growth. Following up with dr Monday. I’ve been on phenobarbital for 20 years.

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Replies to "I just had same issues, they did an MRI and I have a left temporal small..."
Lisa Lucier | @lisalucier | May 16, 2019

Hi, @triplets5 - welcome to Mayo Clinic Connect. You mentioned the same issues, I believe as @mythreeguys. This is taking phenobarbital for many years and having auras, balance, focus and memory issues?

Hoping @dawn_giacabazi will chime in, too, with any input related to this medication, especially over the long term.

How are you feeling about this upcoming appointment Monday, @triplets5?

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Leonard | @jakedduck1 | May 16, 2019

@triplets5
I replied to you but apparently it didn’t post.
I’ve taken Phenobarbital for 51or 52 years and have been drowsy with balance and memory issues ever since. Although those are common symptoms of virtually all Anticonvulsants I’ve never had an aura. I shouldn’t say never, I may have experienced Focal Aware seizures, previously known as Simple Partials.
Hope your feeling better,
Jake

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