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Small Cell Lung Cancer: Let's connect

Lung Cancer | Last Active: Feb 3 8:02am | Replies (226)

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Thank you for starting this discussion, Merry. I was just diagnosed with SCLC. A PET scan showed a spot in my left lung, nodes and 3 spots on my liver. A liver biopsy confirmed the diagnosis. If you smoke or not, if you ever smoked, if you worked in an industry tgat coukd cause lung issues, if you are over a certain age, insist on at least a low dose CT!! I had a cough for months doctors just attributed to smoking. This was not a smoker's cough. My doctors were unfamiliar with LDCT and none available in my area. I knew of this because my cousin's doctor, in NC, has had her do them for 3 years. I kept after my Pulmonologist who would just respond to quit smoking. Finally, he says, "I will order a CT, if it will make you feel better, but it probably won't show anything." Had the test and get a call to call his office ASAP! By now, this had been going on for about 4 months! So, now I am in the nightmare of urgency. He tells me to start treatment or I am going to die. I can't even get into see an Oncologist here until next week. I called Stanford and will get a call back in 2-4 days. I would like to know if anyone has been treated at Stanford. Any feedback would be greatly appreciated!

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Replies to "Thank you for starting this discussion, Merry. I was just diagnosed with SCLC. A PET scan..."

Margo, my husband was just diagnosed with small cell lung cancer which has spread to his liver and bladder. The diagnosis is poor, yet with new treatments, keeping it at bay and living with it is increasingly possible. They found his secondary tumor in the liver before Christmas and the primary lung mass on January 6th. Luckily we live in Tampa Florida and He decided to be treated at Moffitt by a small cell Thoracic specialist, Dr Alberto Chiappori who is doing a clinical trial For small cell endocrine Lung cancer study . He saw my husband and started him on a 3 cocktail Chemo and immunotherapy treatment immediately. Pop had his first treatment January 15th,16th and 17th. So far he has had NO side effects, yet fatigue often happens this second week.
We have been told that This type of cancer is very effective when treated with Chemo. I have posted the 3 drugs he is receiving, should you want to read that post as well. Happy to speak with you if you like.